सशक्त साथी, स्वस्थ जीवन – नशा और टीबी से मुक्ति

आइए, एक साथ मिलकर एक ऐसा समाज बनाएं जहाँ हर साथी सशक्त हो, और हर जीवन हो स्वस्थ। 

Anuj Johari Patient Advocate 

नशा, जीवनशैली से जुड़ी बीमारियों और टीबी जैसी चुनौतियों से लड़ने के लिए साथियों की भागीदारी ही असली बदलाव की कुंजी है।

सशक्त साथी, स्वस्थ जीवन सिर्फ एक नारा नहीं, एक आंदोलन है – एक नई सोच, एक नई शुरुआत।

नाडा इंडिया फाउंडेशन के साथ जुड़िए और बनिए बदलाव के वाहक।

धन्यवाद। 

Breaking Barriers: A Dialogue on Challenges in Social Work and Community Well-being

During a recent discussion at the XI Indian Social Work Congress 2023, Suneel Vatsyayan* had a thought-provoking conversation with Dr. Sudershan Passupuleti, PhD, a Professor at the School of Social Work, University of Texas Rio Grande Valley. This insightful dialogue took place within the corridor of the National Urdu University guest house Hyderabad.

The conversation revolved around the theme "Leave No One Behind," shedding light on the challenges faced by professional social workers in reaching those who need assistance the most.

The Stigma Surrounding Help-Seeking: In today's society, certain groups, including adolescents, youth, women, and girls, often find it challenging to open up about issues such as non-communicable diseases (NCDs), addiction, trauma, domestic violence, and mental health. The reluctance to talk about feelings and seek help perpetuates a taboo that hampers effective service delivery at the grassroots level.

Nada Acudetox Counselling India Network: Suneel Vatsyayan shared insights into the Nada Acudetox India Network, an initiative aimed at promoting barrier-free health delivery services among marginalised communities. This network emphasises community wellness for behavioural health, encompassing addiction,NCDs and its risk factors, mental health, and disaster and emotional trauma.

Professional Social Worker's Role in Calming the Inner Self: The dialogue delved into the question of whether professional social workers can teach clients to relax from the inside out. By inducing a sense of calm and quieting symptoms, interventions aim to stimulate one's inner energy, bringing individuals into a more balanced state conducive to communication.

Primary Prevention and Engaging Clients: The conversation extended to the primary and primordial prevention levels of intervention. Can social workers treat clients before completing assessments and diagnoses to ensure a cooperative and calm environment for effective diagnosis?

Challenging Assumptions: Several critical questions were raised, challenging traditional approaches. 

• Can social workers help clients in denial about the need for treatment? 
• Is it necessary to confront clients/patient about  their drug use or the trauma they have experienced?
• Is it possible to make a client relax without them losing control?

Overcoming Barriers to Engagement: The dialogue explored ways to engage clients facing various challenges, such as needy and fearful clients, those with low self-esteem and lack of hope, and trauma victims fearful of interpersonal relations. The goal is to initiate treatment at realistic levels, fostering participation and progression.

Continuity of Treatment: A vital question emerged: can clients return at any time, especially following a relapse, and still experience the benefits of treatment? This highlights the importance of creating a supportive and flexible treatment environment.

Initiating a Global Dialogue: This blog post aims to initiate a broader dialogue on the challenges faced by society and the community in general. We invite social workers, professionals, health advocates and individuals to share their insights, experiences, and solutions. How can we collectively overcome these challenges and truly leave no one behind?

Let your thoughts and experiences flow in the comments below. Together, we can build a more inclusive and compassionate society. nadaindia@gmail.com Mobile 9810594544 

हर गुजरी जिंदगी के साथ जिंदगी भी कहीं हार सी गई थी.. An open letter from Nada Young India Network member

हर गुजरी जिंदगी के साथ जिंदगी भी कहीं हार सी गई थी..... 
लत से ईश्वर हर किसी को बचाए।

हरदिल अजीज़ दोस्त,

खत लिखकर तुमसे रूबरू हो रहा हूं। काफी दिनों से सोंच रहा था कि बिछड़ गए साथी से दिल की बात कहूं। उम्मीद है तुम दूसरी दुनिया में खुश होंगे। तुम्हारी जिंदगी का एक मामूली हिस्सा तुम्हे याद करता है। जिस अंदाज़ में दुनिया तुम छोड़ गए वो आज भी ताज़ा है। सिगरेट के कश लगाते हुए कब तुमने भी सोंचा होगा कि एक दिन मौत का कारण बनेगा। तम्बाकू की लत ने दरअसल तुम्हे यह दिन दिखाया।  एक हंसता खेलता परिवार था तुम्हारा। जिसे तुम पीछे छोड़ गए। प्यारी बेटी थी। एक बेटा था। धर्मपत्नी थी। बूढ़े मां बाप थे। दोस्त करीबी रिश्तेदार थे।  तुम्हें आज भी वो  नहीं भूले। नहीं भूले वो लम्हा कि किस तरह अस्पताल में जिंदगी और मौत की जंग लड़ रहे थे। किस तरह से फेफड़ों ने काम करना बंद कर दिया था। मौत एक ऐसा हादसा होता है जिसकी याद कभी नहीं मरती। 

सिगरेट आदि तम्बाकू प्रॉडक्ट्स के संपर्क में जब  पहली बार आए थे। उस मोमेंट नहीं सोचा होगा कि लत लग जाएगी। मैं जख्मों को हरा नहीं करना चाहता। व्यक्तिगत क्षति मगर बड़ी होती है भाई। क्या नहीं बाक़ी कहने को और जिंदगी गुजर रही। मौसम के सख़्त इम्तिहान में जिंदगी का साथ सबको नसीब नहीं।  मुश्किल वक्त ही दरअसल परीक्षा होती है। तम्बाकू सेवन के कारण हुई मौतों में तुम सिर्फ एक चेहरे हो। कितनी ही कहानियां आए दिन सामने आती हैं। रिपोर्ट का हिस्सा बनकर अखबार की कतरनों में खो जाती हैं। तकलीफ से गुजरना ना जानें क्यों एक शाश्वत हकीकत बन सी गयी है। तुम जिस दुनिया में चले गए वहां से कोई संदेश नहीं आता। शहर अब काफी बदल चुका है। बाज़ार लगा हुआ है। अपनी उपस्थिति बनाए हुए है। 

कई मामलों में पीड़ित अपने पीछे कुछ भी नहीं छोड़ जाता। ना परिवार ना संपत्ति। ऐसे लोगों के अफसोस कोई न कोई करता होगा। 

तम्बाकू को समय रहते काश यह लोग छोड़ देते। उसके संपर्क में ही नहीं आते तो और अच्छा होता। कुछ पल के नकली मजे के लिए स्वास्थ की परवाह ना करना खुद पर भारी पड़ता है।

आदत बड़ी चीज होती है। लग जाए तो फिर जल्दी छूटती नहीं। 

 लत से ईश्वर हर किसी को बचाए।

तुम्हारा.....

Tahira Kashyap Khurana is a film maker & breast cancer survivor shared her life story

Pallavi briefed Tahira Kashyap Khurana about Nada India and Young India Network for Good Health . Tahira Kashyap Khurana is a film maker and breast cancer survivor shared her life story @NCDs she mentioned alcohol as one of the risk factors.   The Economic Times SDGs Impact Summit 

Nada India team @ The Economic Times SDGs Impact Summit 2019 in Delhi 

on 16th Nov 19 

I am, a woman, one of the 5 million persons, in India, who are Rheumatoid Arthritis Sufferer- Survivor (RASS)

Nobody dies of Rheumatoid Arthritis but of illnesses that are induced by Rheumatoid Arthritis through the compromised immunity of the body.  

It is a silent non communicable disease not talked about much and not listed as a major NCD.  It mostly afflicts women leading to challenging mental states and responses. 

"... However, even a low prevalence of 0.34% would meanthat India (1.2 billion populations) has probably 5 million patients.... theburden of RA nonetheless is extremely high and needs to be seriously addressedat a national level. " 

I am, a woman, one of the 5 million persons, in India, who are Rheumatoid Arthritis Sufferer- Survivor (RASS).

I had just finished a huge project which contributed to the efficiency of one of the two National duties.  My team and I worked 18 hour days for five straight months. Even while working at the national scale I had a severe attack of Psoriasis on my hands and soles of my feet. The skin on my palms and sole was dry as caked clay and cracked. It was worrying, painful, and cosmetically ‘not nice’.  Once the Psoriasis cleared Rheumatoid Arthritis set in. All joints were affected but the hip joint. I was almost crippled, incapable of the most basic and simple mundane routine activities. I could not lift my head, my eyes hurt, body bloated and mind fogged. It was bewildering for me. 

I think that a  severe deep personal trauma, the long hours of work with indifferent diet and responsibilities were the triggers of the RA that must have been dormant in my system.

Fortunately I had and don’t have diabetes and hypertension in spite of the humongous task just accomplished and my condition. I visited different specialists and had different diagnostics conducted. But the condition kept getting worse. Finally the Senior Consultant of Internal Medicine advised a consultation with the Rheumatologist. Medication, regular follow up and temperature control put me on the path to recovery.  And I was travelling international for work after three months.  I was surprised that not having the courage to even think, leave alone attempt it, I walked up a hill to see the beautiful lake and another one to see a Dzong.  

So nothing is permanent. Everything changes. All we need to do is to be aware, make the effort and ask for help when needed. RA makes one extend the boundaries. Do things that seem impossible at certain times. So, what did I do to manage my condition to turn from sufferer to support provider? I did the following which I shared on Rheumatoid Arthritis Network- India, RAN-I,  FB page.

• Make sure you work to reduce your stress...
• Make sure you do some sort of workout/ exercise...
• Make sure you reduce the 'whites' in your diet....
• White flour sugar, common table salt, sugar, synthetic milk...
• Instead have the greens, yellows, reds and browns
• Nuts and crunchy leaves and seeds
• The spices on your kitchen shelves
• Cinnamon coriander cardamom cumin fennel oregano black pepper curry leaves basil leaves mint leaves...
• Coconut water cucumber juice spinach juice
• Lots of fluids...
• Get fresh air
• Be happy 
• Try to chill even on a bad day
• Watch a movie
• Go out
• Be informed about your treatment and medication
• Talk to your treating physician
• Remember there are more than one systems that can treat RA
• A combination often works.
• Keep warm and dry.
• Switch on the A.C. 30 mins before you hit the bed
• Switch it off when you hit the bed...
• You will wake up with reduced stiffness.
• Plan challenges that will make you work on reducing the pain and discomfort...
• Meditate, walk in nature, make a small garden of few pots, do clay work ...all this will give you positive energy...
• Get up....don't wait for someone to give you the glass of water
• RA can be managed and it will not take over your life.
• To all of you who like this page....
• From a recovered cripple moving beyond boundaries. 
• Much love.

THE OBJECTIVES of RAN-I are to connect for sharing of experiences, asking for suggestions, among those who are suffering, have survived and live with Rheumatoid Arthritis conditions and between RA affected and experts.

Who can join and are invited? Anyone who has the RA condition and or is caring for someone with it, nutrition advisors, skin care advisors, exercise and self management trainers, medical experts from all schools of medicine, mental health experts, and anyone else who empathizes.

This is not supported by any business interests and those with business interests are not welcome.

The reason we build this network is that in India there is no place to share and meet FOR THOSE WHO HAVE THE RA, WHICH IS PART OF an Individual's LIFE ONCE IT VISITS. The morbidity is high but unrecognized.

On February 2 2016, named as world RA day, a What’s App group called Aasha was started and has already a conversation going.

The promoter of this page and site is RA affected, who is making the best of the conditions. In the role of support provider and caring it is a prerequisite that I take care of my physical, emotional, mental and spiritual wellbeing. I am aware of my health, monitor the parameters regularly, aware of my diet, daily morning walk, gentle yoga, daily meditation, interact with friends,  regular work hours, reduced computer gazing and reduced stress and remove stressors. This has reduced morbidity and fogging and makes me available to support others who need only a compassionate ‘ear’,  or some advice for themselves or a parent and share information.
Join our Networks 
Nada India NCD prevention Network
Young India Network for Good Health 
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