Thursday, February 20, 2020

World Cancer Day 2020 @Nada India

Riya Nada India Youth Catalyst attended "Survivor's Day" organised by Indian Cancer Society on 6th February,2020 at Select Citywalk Mall. The event had a burst of colour and laughter celebrating the victory of people against cancer. There were dance and musical performances by survivors young and old as well as some professional groups who had all come together to create a joyous afternoon in the wake of World Cancer Day. What stuck with me were the words of a doctor from Max Hospital who said, "We fall sick alone, but we can heal in a community. Let's forms a human chain to combat cancer."

World Cancer Day 2020: Cancer Prevention through Alcohol Policy
Alcohol-related cancer deaths are a global public health crisis.
For breast cancer globally, alcohol is the single biggest risk factor.
In total, alcohol-related cancer causes 650.00 deaths every year.

But awareness and understanding of the alcohol-cancer link remains shockingly low and a far cry from the levels of awareness of smoking and cancer.

This is not only a matter of public health concern but a social justice crisis.

It is time to change that and turn the tide on alcohol-fuelled cancer.Evidence shows that informing people, increasing awareness and understanding of alcohol's cancer risks leads to bigger support for alcohol prevention and control measures. This in turn leads to significant reductions in cancer mortality.
We calculated the cancer deaths averted from improved alcohol policy through a 10% and a 30% total per capita alcohol consumption reduction scenario. 
  • Assuming 649,840 alcohol-related cancer deaths in 2017, a 10% reduction of total alcohol use would lead to 9% fewer alcohol-related cancer deaths, meaning 57,300 fewer deaths.
  • With a 30% lower total alcohol consumption, calculations show that 26% of alcohol-related cancer deaths could be averted, meaning 171,460 fewer deaths. 
 let's start the movement to raise awareness among the broader public and empower decision-makers to tackle the alcohol-cancer link. The returns on investment will be substantial...

Tuesday, December 10, 2019

Sunday, December 8, 2019

Jyotsna Govil .... Our Views,Our Story

Jyostna Govil’s lifelong experience of caring for people living with NCDs has taken many forms. Following her father’s diagnosis with an inoperable stomach cancer 35 years ago, she helped to build the Indian Cancer Society in New Delhi and began dedicating her life to cancer screening, awareness, and patient support. In 2013, Jyotsna’s husband was diagnosed with Alzheimer’s Disease and she spent 6 years caring for him. Today, she works tirelessly with the Healthy India Alliance to help break down stigma and discrimination surrounding NCD treatment and care and to bring her intimate insights of dealing with co-morbidities to the field of NCDs. Universal Health Coverage packages must address the needs of people living with multiple chronic conditions in order to be comprehensive and people-centred. Nada India is founding Governing Board member of Healthy India Alliance 

Saturday, September 7, 2019

Patient Champion Spotlight: Jyotsna Roy

August 2, 2019

During the 2019 World Health Assembly (WHA) in Geneva, Global Health Council provided several patient champions with the opportunity to share their stories, and contribute to discussions around universal health coverage (UHC). Following the Assembly, we sat down with each patient champion to get their thoughts on WHA. Hear from our patient champion Jyotsna Roy who volunteers with the Nada India Foundation. Nada India has been creating the spaces & nurturing diverse networks of community-based initiatives amongst the marginal and most at-risk populations in the urban and rural. Through its capacity building work Nada India has enabled the vulnerable adolescents & youth to make choices for healthy ways of living. Nada India has also included in its programmes senior citizens and women from the “urban villages”. Gender equity is a strategic objective of Nada India in its vision for a Gender Equal and Just society. Additionally, Nada India works under the framework of the Convention of the Rights of Children, CRC, with children, adolescents and PLWNCDs through the Young India Network for Good Health.

Tell us a little about yourself?

I am an Indian woman and my name is Jyotsna Roy. I have been diagnosed with rheumatoid arthritis, which has impacted on my mobility, motor flexibility and sometimes the acuity of my brain. However, on a positive note it has made me sharply aware of the signals my health conditions give me. I am prepared for the long haul of this disease and the consequent morbidity. I am also aware that the medical insurance that I have does not cover this disease. In spite of having a condition which requires close daily monitoring and self –management, I travel and work on international assignments and also in post conflict situations.

I advocate for general “good health and wellbeing” among women who have rheumatoid diseases, specifically focusing on youth with mental health and substance dependence including alcoholism. Nada India, the organization I volunteer with, works with youth groups and also does work through community-based mobilization.

Describe one of your favourite events or one-on-one conversations during WHA, and why?  

The gala evening [Heroines of Health] organized by Women in Global Health in which professionals delivering health services at different levels from specialty hospitals to the primary health care centres were acknowledged, thanked and felicitated.

The session on “accountability” at all levels and through the different stakeholders who are the rights holders and duty bearers. The targeted and transparent delivery of resources and accounting for it is key for efficient and effective service delivery of health services.

In the one-on- one with the fellow Patient Champions we agreed that the political will to reach the last person who needs support for ensuring health is critical and essential. The second is the availability of resources, technical and financial, through the public and private sectors’ participation and contribution was also discussed.

We know this was your first time at WHA. Did anything surprise you?

At WHA for the first time – yes! The availability of snacks and beverages after each event really surprised me, as in other such events these things just vanish.

On a more serious note the partnership of the twelve organizations that are working on the different “accelerators” for the Global Action Plan for Health and Well-being impressed me. The research and development, and the demographic research for the incidence, prevalence and surveillance of diseases as essential accelerators are critical for the Sustainable Development Goal (SDG) 3 and its targets. The accelerator on civil society role and engagement and its discussion and actions will interest me.

What were some of the main recommendations or insights that you provided on panels or discussions?

Wow I spoke from experience…

One of the important highlights was that health is hugely gendered and embedded in the socio-cultural and economic micro –and macrocosms.
Ill health costs livelihoods. This affects the workforce and even causes underemployment among the professional or white-collar workforce.
Non-communicable diseases (NCDs) are mostly not recognised and are a long-term financial burden. There is cause for anxiety and stress related to suffering an NCD because of the longevity in a morbid state and the risk of other comorbidities (NCDs) occurring along the way. Medical insurance does not cover NCDs, the medication, or the disabilities that follow.
There is need for more research on specific NCDs, in addition to the big five diseases. Patient testimonies will be of immense use. Patient empowerment through emotional support, information on holistic health traditions and variety will lessen the morbidity and make them productive.
Women’s health is not only reproductive health. I suspect that the prevalence of NCDs is high among women.
How do you plan to continue or relay these global conversations back home?

The WHA has created a flurry of activities here too, Delhi/India, and we had a youth roundtable on Health, a workshop on SDGs with 200 college students (youth again) as well as a one-day workshop for community health counselors after I returned. And everyone would like a byte and a blog, post event! Phew!

In addition, Nada India has a calendar of events and I am invited to participate and facilitate and contribute. The Young India Network for Good Health is an active network which works at the community level and in the campuses. They are completing a baseline survey on ‘Prevalence of NCDs among alcohol and drug users in Delhi/NCR (National Capital Region)” to understand the need for provision of health education on non-communicable diseases and its risk factors at rehabilitation centres for substances and alcohol dependents.

The members of this group are media savvy and use mass media for messaging on health. This group of young people self-finances their activities of research, awareness raising, community mobilization and action. For them to move to the next level in terms of outreach and engagement with issues and advocacy they need financial and technical support. A very senior journalist blogged about the efforts. I am on call for them as a Resource Person.

What are your top three takeaways from the week?

  1. Patient Empowerment and Patient Advocacy
  2. Get savvy in the use of social media
  3. Partnerships at all levels and geographical spread, to move the SDG 3 agenda and its asks for technical cooperation, effective financial mobilization and Accountability.
Copy rights are with Global Health Council 
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Friday, June 21, 2019

Peedith' or the Victim (Survivors) and ART FOR WELL BEING

Afilash Issac 
Keeping in view of Alcohol as well as the its addicted beneficiaries many portals as well as posters had been groomed up in our society so far.

On my personal level has attended many art exhibitions pertaining to many social issues or social evils. I once got an opportunity to interact with few artists from other states of our country who expressed their own inner feelings which inspires them to portray their inner imaginations on the white sheet which waits for the artist to get itself embedded with the human feelings which in one way or the other hold the capacity to heal if correctly discussed with or in a meaningful platform.
Caricature by Aflilash
Caricature by Aflilash  

Nada India Foundation the pioneer in many of the Health advocacy programmes which believes in well being of all which under the dynamic leadership of Mr Suneel Vatsyayan who is the Chairperson and keeps the capacity of opening up many blockades among the 'Peedith' or the Victim (Survivors) and the grave issues which they undergo.

During a conversation with Mr Suneelji also with the presence of Mrs Pallaviji and Mrs Pushpa who works as a Volunteer with NIF, many groundbreaking imaginations as well as naked realities came in my mind when Pushpaji was requested to put forward her story which once gave her a tornadic experience compelling her to end her life but was pushed back to life keeping her future associated with her children who didnt committed any mistake knowingly or unknowingly.

It was with a strong gesture she presented her all agonies with us. In the starting itself Suneelji suggested me to copy down the essential facts and to present it in an artistic impression. 

The encouragement and enthusiasm which i derived from him, especially in expressing all of my artistic imprints conveyed all most a jist of study towards this substance abuse. The meeting was very much alive which almost dealt with stigmas which every of our Indian lady carries on with her if one among the family is addicted with this substance called ALCOHOL.

Very sooner I was able to draw an artistic impression in relation with whatever she(Pushpa) narrated. One factor/reality which emerged out from that meeting and which also strikes me was......"Dar zaroori he" which lead me to quote "There is no GAIN without a PAIN".

But the fact is that why we should all wait for PAIN? Why can't we uproot this before it touch the person through various sources.

Thanks to Nada India who very bravely sents out its volunteers to study and to counsel the
addicted as well as who advocates such evils in the society.

I personally thank NIF and the unsung heroes who had taken such heroic steps for the welfare of the society and would like to extend my humble thanksgiving to Suneelji who gave me an opportunity to get associated with NIF as well as to use my art work which was once used to earn the bread but nowadays used to serve the society under the banner of ART FOR WELL BEING.

World Cancer Day 2020 @Nada India

Riya Nada India Youth Catalyst attended "Survivor's Day" organised by Indian Cancer Society on 6th February,2020 at Select ...