Monday, December 25, 2017

Youth Leaders @ Second Global NCD Alliance Forum called on CSO and government to step up the pace on NCDs.

Nada India at the Second Global NCD Alliance Forum (7-11 December 2017)
On December 7-11, Nada India’s youth advocate Vindhya was at the pre forum youth workshop and the second Global NCD Alliance Forum in Sharjah, United Arab Emirates!
The second Global NCD Alliance Forum was organized by the NCD Alliance (NCDA) in partnership with local host organization, Friends of Cancer Patients (FoCP). 350 members of the NCD movement from 68 countries attended the Forum from 9 – 11 December in Sharjah, United Arab Emirates. This year, an increased number of youth delegates and people living with NCDs participated in this unique event, which reflected the Forum’s objective to promote the engagement of the next generation and people living with NCDs as central parts of the NCD movement.
Vindhya was among the 22 youth delegates who called on their peers, CSO and government to step up the pace on NCDs. The enthusiasm and engagement of 22 youth delegates was reflected in the Youth Call to Action produced at the Forum, as a time-bound and measurable agenda for the next generation in the lead up to the 2018 UN High-Level Meeting on NCDs.
Experiences shared, lessons learnt, and solutions discussed
The pre Forum Youth workshop developed a network of youth advocates focused on the non- communicable disease global agenda in the lead up to the UN High Level Meeting on NCDs in 2018
The focus was on how to engage the right people at the right time; i.e. mapping the key stakeholders, setting up the priorities and the importance and impact of these key priorities. The youth advocates were exposed to some excellent examples of successful stakeholder engagement and how it made an impact at local, national and global levels.
The key stakeholders identified by the youth advocates involved The Ministry of health, finance, social justice, youth, PLWNCDs, caregivers, WHO, private sector, pharmaceutical companies, Hospitals, NGOs...the list is endless but the one who can influence and is interested will lead. And what are the priorities for NCDs? Finance, awareness, access to health care, risk factors and youth behavior, prevention, youth participation, PLWNCDs and the commercial determinants of health.
The participation of youth and people living with NCDs is extremely important at all levels; we learnt how to develop a comprehensive agenda for young advocates using an integrated and inclusive approach keeping in mind that we need room for all, health for all.
“Jack Fischer from NCD Free told us why is it important to have a story to tell while pitching in for an idea. It is easier to connect when you have a real story equipped with facts to tell. There are more chances that the other person will actually listen to you when you can strike a connection. Find your story (could be yours, of a family member, friend or anyone who you know), equip it with facts and present it with your idea to bring in a social change in no more than 60 seconds. Always remember that the busy world doesn't have more than 60 seconds to listen to you and your story. So go and find your story to change the world.”Vindhya, Youth Advocate, Nada India
Vindhya on behalf of Nada India also set up some commitments for #India at the Forum:
·         To mobilize youth in NCD response.
·         To promote the engagement and meaning involvement of people living with NCDs.
·         To mobilize and strengthen the civil society on my country.
Key highlights from the Pre Forum Youth Workshop
Priorities for “Youth”
·         Throughout the development of the health related frameworks, young people should be at the forefront in advocating for priorities to improve health and wellbeing.
·         Youth voices can put pressure on decision-makers to recognize and include issues that are often side lined, particularly related to alcohol and substance abuse.
·         Young people can develop grassroots campaigns on the prevention and management of alcoholism and should advocate for policy-level changes.
·         Many of these young people are researchers helping to generate evidence being used to support these changes.
·         As young people, they bring unique experiences and perspectives to health agendas and have a right to negotiate the future health of the communities in which we live.
·         Ahead of next year’s high level meeting, advocates must ensure that the priorities of young people are heard and acted upon at every level and that governments are held accountable to their health commitments.
·         Ensure universal and equitable access to high-quality, affordable, age-appropriate health care.
·         Scale up financing and resources for prevention, management, and treatment of NCDs across the life-course.
·         Raise awareness of children, adolescents, and young people, and sensitize government officials about the risk factors, prevalence, and impact of alcohol as one of the major risk factors.
Agenda Action for Youth
·         Advocacy for the prevention and control of alcoholism and drug abuse needs substantial input from youth as drivers of the next generation of innovative solutions and action for health.
·         Deliver youth-generated messages on awareness and advocacy priorities via social media, blogs, and other communication channels.
·         Measuring progress is essential to ensuring these steps achieve their intended results. We commit to monitoring delivery against these actions, as well as celebrating and learning from successes, and identifying further opportunities to sustain momentum towards next year’s meeting.

“We urge you to continue the conversations you started here. Continue communicating with partners – both old and new. Continue listening to and engaging the voices of the next generation. Continue agitating for change…for health equity…for the sake of every person living with or at risk of NCDs…for the sake of us all. – “Katie Dain, CEO, NCD Alliance

Hi I am a Nada Good Health Advocate living with addiction and NCDs.....

Hemant presented paining to NCD Alliance  
Hi I am a Nada Good Health Advocate...... Next month I am going to complete my 14 years of recovery from drugs & alcohol. For last  14 years I have been taking care of patients suffering from medical disorders like – diabetes, cancer, alcoholic lever disease and hyper tension.  These co-occurring medical problems make the treatment of substance use disorder a lot more difficult and risky. Therefore, training to handle these co-occurring disorders is very important for a person working in substance use disorder field. I believe prevention of NCDs is all in our attitudes and we need to change the attitude & belief of people towards #NCDs and people living with NCDs (#PLWNCDs).


I recently participated in the 'Our Voices Our Community' in Geneva and now will be applying my experience more confidently to handle such patients as a Nada volunteer, peer educator & care giver. The experience gained in the workshop will be utilized for the prevention of NCDs as part of alcohol & drug awareness programs. I also presented to the Nada India scroll of appreciation on behalf of Nada India NCD Network leadership to the NCD alliance.
I also gifted  one painting prepared by NCD peer educators and Good Health Advocates from Bapu camp Mandi village south Delhi slum. Nada India has been working with them for the last five years.



The painting has a life of its own. I try to let it come through"      - Jackson Pollock
https://www.jackson-pollock.org
"The workshop focused on the needs and agenda from the perspective of the people suffering from NCDs themselves or caregivers to people suffering from NCDs. Several powerful personal stories were shared by participants on how they overcame the challenges of the diseases as well as became strong advocates for bringing treatment and diagnostics to people in their countries. There was a lot of discussion on identity, participation, voices, prevention, treatment, advocacy and commitment. The participants were divided into groups to discuss and debate on the agenda items and arrive at consensus as a larger group. The debates were invigorating and the group as a whole drafted the final advocacy agenda in its language, content and important points to be presented at the NCD Forum in Sharjah as stated by Dr. Ratna another participant from Dakshma India.


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